You are here:
Family and The Children's Trust, Tadworth would like to hear from
parents and carers of children who spend long periods in hospital.
The charities are asking families to fill out a short survey which
could provide vital information to strengthen their 'Stop the DLA
Stop the DLA Takeaway highlights that disabled children who
spend long periods in hospital are at risk of having their
Disability Living Allowance (DLA)
suspended. Current regulations mean DLA is removed from a child if
their hospital stay is over 84 days. The days do not have to be
consecutive so hundreds of severely disabled and sick children, who
are regularly in and out of hospital, could be affected.
The Government argues that when a child spends longer than 84
days in hospital 'a patient's needs are fully met free of charge'.
However, Contact a Family and the Children's Trust Tadworth hear
from families that they provide the same or more care when their
child is in hospital and incur extra costs such as loss of
earnings, travel to and from hospital, parking and childcare
If you are the parent or carer of a child who has spent a long
time in hospital please complete the Contact a
Family short survey (link opens in a new window). It
shouldn't take more than five minutes.
This information could help Contact a Family and The Children's
Trust strengthen their call for the government to scrap the rules
that deny some of the UK's most severely disabled children
financial help when they need it most.
If you are a parent and have been affected by these issues and
need advice and information, call the Contact a
Family freephone helpline 0808 808 3555.
Contact a Family (link opens in a new window)
Turn2us is part of Elizabeth Finn Care, a national charity registered in England and Wales: 207812; and Scotland: SC040987.
Hosted and supported by Positive Technology
Visit the Elizabeth Finn Care website