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Fibromyalgia Action UK (FMA UK)

Read how this national charity supports people with fibromyalgia - a disabling chronic pain condition - and their families.

Fibromyalgia Action UK (FMA UK) is the national charity supporting people in the UK affected by fibromyalgia, an incurable widespread pain condition. We have 21 years of experience of pioneering in this field - and, in July 2015, we combined efforts and expertise through a merger with FibroAction.

FMA UK is a registered charity run primarily by unpaid volunteers. Our volunteers are the backbone of everything we do and without them we could not accomplish any of our goals.

About fibromyalgia

Fibromyalgia is a debilitating chronic pain condition. It causes widespread pain, chronic fatigue and sleep deprivation. The pain can present in any part of the body. People experience hypersensitivity to pain, touch and other stimuli, such as smell, weather, temperature and sensory overload.

It is generally thought that fibromyalgia is a neurological condition, caused by faults in how pain is transmitted through the central nervous system.

Symptoms are generally noticed between the ages of 30 and 50. The condition is more commonly diagnosed in women. However it can affect anyone at any time in their life.

Extreme fatigue, pain and sleep deprivation often mean that people with fibromyalgia are unable to undertake everyday tasks, like dressing, shopping, cooking; are often unable to work; and frequently require assistance with personal care. Fibromyalgia has a devastating effect on the lives of people with the condition and their families.

What support does FMA UK provide?

Up to 2.7 million people in the UK live with fibromyalgia. We know people living with this condition in every community, in every profession, in every part of the country - and we support them as they deal with this challenging condition.

Every year, FMA UK provides direct support services to thousands of people in the UK. It is the only fibromyalgia focused charity in the UK which produces evidence-based information about fibromyalgia. Our information displays the NHS ‘Information Standard’ mark, which means it is accurate, verified, up-to-date, can be trusted and used by healthcare professionals and patients alike.

By raising awareness of fibromyalgia among medical professionals, politicians and the general public, we are improving the knowledge about this condition and strive for the availability of treatment options to be better accessible to everyone who needs them.  

FMA UK's services

FMA UK is not a grant-giving charity but it provides many support services, including:

  • Benefits support and helpline. For more information, see the Helplines section of the Fibromyalgia UK website 

  • An online support forum is available 24/7 with office bearers of the charity being available to help.

  • A Health Unlocked online community to give people living with fibromyalgia a way to communicate with others and share their experiences.

  • Free information booklets for patients, young people, healthcare professionals

  • A UK wide network of local support groups.

  • An email support system where regional coordinators answer questions and refer people to local support

  • Fundraising/marketing support for local support groups or people wanting to raise awareness and funds for FMA UK.

Find out more

If you have fibromyalgia or know someone who does, you can find out more about how we can help you and how to contact us by visiting the Fibromyalgia UK website.

Date of publication: September 2015